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Who is The Lodger?

The Lodger is our son!

He's called The Lodger as when I was pregnant with him, we were decorating his soon-to-be room and my dad asked "Where we getting a Lodger!". We laughed and the name stuck.

The Lodger happens to have Prader Willi Syndrome. We hope you enjoy the read and learn more about the complexities of PWS.

Though do remember, if you've met one person with PWS.... you've met one person with PWS.
No two people with PWS are the same.

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Ive captured this moment before, the waking and slow approach, It happens like this. The Lodger wakes, reaches out turns off his sleep apnoea machine and carefully removes his mask. He then slips carefully from the bed making sure not to wake Walter and pulling the covers back up on him. Important not to wake wake Walter. Th…

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The Lodger is now very aware that people eat different things to him. At meal times he'll point out if we are having the same meal and mention any differences between them. He'll show off his counting skills too... 'one piece of bread', 'two tomatoes', 'three different foods on my plate'. 

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