Skip to main content

Action Boots

AFO's.

Ankle Foot Orthotics.

When I first heard these words, my heart ached a little bit more. I knew they would help The Lodger but here was something else we had to deal with and ultimately come to terms with. 

Just last month The Lodger was fitted with AFOs. To the uninitiated these are also called splints. Splints. It's such a harsh word. It's an even harsher word when you attach it to your two year old little boy. 

When we attended our orthotics appointment, I was hoping that the physiotherapist had it wrong, that he wouldn't need them. The Lodger as usual, smiled and waved through his assessment and it was concluded that he would need AFO's. The warrior in me, smiled and said 'Anything that helps him to walk is great'. Inside, I was sad. Here's another thing that The Lodger had to deal with. 

As parents, we approach all the challenges The Lodger faces with positivity. AFOs were the last thing we wanted for our son but for them to succeed, we needed to be pro-AFOs. We didn't need to worry. We should have remembered who are son is! 


The Lodger always surprises me. Not once has he complained about them. They immediately became part of the routine. Each day, an extra hour of AFO time was added on to get used to them and within a week, he was in them full-time. It should've taken two weeks. 

Yet again, The Lodger wins. He's stronger because of them. He can walk with someone holding just his hands. He's sturdier on his legs. 


He was recently showing his AFOs off to my cousin. 
"Action boots" my cousin said. I agreed. These are The Lodgers Action Boots. 

Action (definition): the fact or process of doing something, typically to achieve an aim

The Lodger is determined. He will walk one day independently and it's the Action Boots that will help him succeed. 

Comments

Popular posts from this blog

Turn around and go home.

Prader-Willi Syndrome. It raises its head when you least expect it. Although in hindsight it was totally going to appear because we did everything we weren't supposed to.  The Lodger and Little Bro walk in the woods (not today!) I'll set the scene. It's a lovely autumnal Sunday. The sun is shining, it's not raining and it's not cold. A walk would be just the ticket before The Lodger has his Sunday movie. As you know, routine is important. Movies can't be missed.  We decided on our route- the route we call the castle route. You guessed incorrectly, it doesn't feature a castle but if you go off path and really crane your neck you might just glimpse one.  However when we got to the woods, I switched the route up. I don't know why. I just did. A moment of spontaneity. Anyway Hindsight. Lesson learned.  The new route meant a bit of climbing, so a lot of helping The Lodger and for The Lodger he wasn't able to continue his telling of the story he paused las

Steak is my favourite animal.

By Rory The Lodger loves cows. They are his favourite animal. They are also his baby brothers favourite animal because the Lodger decided they are.  Cow watching! The Lodgers birthday was recently. A huge day in his and our life. 10 years into our journey of discovery and all the other things Prader-Willi Syndrome throws at you. He wanted the perfect birthday. Don't we all on our birthday. Unfortunately the Lodgers idea of the perfect day for our birthdays doesn't always live up to his high standards. Or what you'd actually like to do on your birthday. And this can lead to unhappiness with the plan.  Things have to happen certain ways. And sometimes for example if I had a glass of orange juice for my last birthday breakfast I obviously have to have one this year. And probably, every year. Routine is important. We created that monster ourselves. This year my birthday was surrounded by much sobbing and stress as when the cake didn't work first time (and I was OK with it,

Hunting Nuns

By Rory Today we went hunting nuns. It a past-time I hadn't expected to be partaking in when I woke up this morning but that's what was decided we would do so we did it. I should explain.  The Lodger loves witches. His favourite witch is the Grand High Witch.  While some years ago we worked through the logic that the Grand High Witch was not real we discussed actors.  Now obviously, his favourite actor is Angelica Huston.  She lives in America so we learnt everything about her.  We learnt she went to school in Ireland  In Kylemore Abbey.  We now visit Kylemore Abbey. Alot. The Lodger likes the house which was then the school.  He likes the bus to see the Connemara ponies and the Kune Kune pigs. I like the gardens.  We now go there to hunt nuns.  Unfortunately today we didn't catch any nuns but we did do some research. We investigated every picture of the nuns. We read all about the nuns. We looked in odd places in case a nun might be there. But there were none to catch. We